Chemo Camp Finale — Letters from Home

I have been thinking about y’all a lot lately. Who, you say? Y’all. All y’all, as we love saying in my Neck of the woods. Do you see that stack of cards there? (more than 250 of them) The flowers? The little gifts? These things have filled my soul these past 18 months as I found myself captured in Chemo Camp.

So I have been thinking about all y’all who got me through it. Re-reading your notes and seeing your faces as I did, thinking of the emails, too, and your visits (way back when those where allowed), the food (Lord, have mercy, the FOOD!) the walks and the phone calls and the quiet moments when we sat in silence and you let me cry as I tried to take it all in. Your laughter. Your donations to Susan G. Komen and the Walk for the Cure. Your telling me I looked beautiful without my hair (though we all know I didn’t) — and now when you tell me you like my new “look”. Every single one of these things that you did for me has made my life so rich while I waited for camp to be over.

I didn’t save any letter my parents had time to write when I went to camp when I was 9. I wish I had (maybe my mother has saved the no doubt thousands of letters I wrote to her in the three short days I stayed, though if she has, she has not revealed this.) I’m sure if I had save those letters from home they would have been much like yours: We love you, you can do this, think of all the friends you’ll make and how much fun you’ll have (well, maybe not that last idea for chemo camp.)

When I thought I was going home from camp last November and then found out a week later that my mother was not, in fact, coming to pick me up, and that I would be staying for a whole ‘nother YEAR — you stayed right there with me, sending cards, calling, walking, assuring me that I could stay as long as was necessary, and then I could go home. (No more meals, but alas, I had packed on the casserole pounds in the previous year and girded with such sustenance, I soldiered on through more camp activities.)

Like target shooting.

I remember my daughter did this at her week-long camp and could easily hit the mark, so much so that when she CHOSE to become a camp counselor while in college, (she must have gotten that DNA somewhere else) the camp assigned her this post. My daughter and I have never been the kind of twinsy mother/daughter team some people think of. I spent years teaching her how not to be like me, so I consider this choice as making me, finally, a champion.

And then I became the target shooter, with only one goal in mind: Get rid of the damn cancer.

And guess what I did? I GOT RID OF IT, with the guiding lights of my doctors and the nurses at the Rex Cancer Center, who finally LET ME GO HOME last Tuesday. All by myself.

Though my old pal Tim and my nurse Hope (who hugged me, despite all the rules) wished me well, I drove away, with only the shadow of a tear in my eye.

“She’s grown,” I could hear my mother say. “You have handled yourself admirably,” my brother actually texted.

That part, “admirably,” he quoted what my father might have said, if he were to have reluctantly shoved me off to cancer camp. He is right, Daddy would have said that, but I honestly don’t quite understand.

A friend of mine who had cancer just before me has said often “cancer can’t wait.” (It’s a tagline for a local organization raising money to cure every kind of cancer affecting women, not just breast.) And this is so very true. Sorting through all my cards the other day, I found an email I wrote to my Bible study on May 15, 2019, the day I got the news. I was to lead it the next day, and I told them, so niavely, that a cancer diagnosis would not disrupt the dozens of plans I had for my life in the year to come.

How wrong I was. A cancer diagnosis does NOT wait. Within minutes of learning you have it, you turn you life over to those caring for you and though you ask a thousand and more questions, not one of them is “when?” because the answer is always: “right now.”

One of the few things I remember about real camp is the swimming test. Everybody had to take it, no matter what. I remember looking at the murky river water with the tadpoles swimming in it and asking, “when?” and they said pretty much: “Now”. And I had only two choices: dive in and get it over with, or wade in and swim from one point to the next, as best I could. No bravery. Just truth.

The same is true for Chemo Camp.

On the first round, I dove, head first, not knowing much about what it would do to me (though they did tell me as honestly as they could.) The second time, I waded in, testing the waters a bit, though I knew I’d eventually I’d have to make that dive. And I did.

But despite what some have written me, I am no hero.

My doctor is a hero. She has done the hard work of puzzle master, her fine mind taking my own curious circumstances — three kinds of breast cancer — to task, until she found the exact cocktail combination to cure me. Did you get that? CURE ME. Which she did.

My nurses are heroes. They greeted me and all the other cancer patients as if we were the only one in the room, day after day, caring for us when some get our walking papers, and when some don’t ever. They are gracious and loving and champions for all.

And then they let me go. Tuesday a week ago. Just like that.

I was a puddle. Honestly. After a quiet day in the chemo room I was looking for the marching band. A raised pom pom or two. But when that did not arrive, I looked to Hope, who had nursed me on my darkest day, probably, when I was the most homesick I had ever been in my adult world.

“I wish I could hug you,” I told her. “I will never forget your kindness to me.”

“You are gettin’ it!” she said, breaking all the rules of COVID and giving me a hug I had not had from anyone except my husband in too many months. It was tight. And we sobbed. And I felt healed.

Back at home, family had filled my kitchen with pink. Two dozen roses, one dozen from my birth family and mother, and the other from my family by my daughter’s marriage. “Welcome home from camp,” their card said. Tickled me pink.

When you have cancer and get through treatment, you pick your ‘cancervesary’ as a way to remember it. Could be the day you are diagnosed or the day you felt healed or the day, through surgery, when cancer took leave of your body. That day, the day cancer took leave of me, was one year ago today.

So I take today to celebrate. And on this day before Thanksgiving, to be thankful to God for all of you.

I also want to honor all those who have gone before me in this camp. Who carved their initials on the scaffolding and in the bathrooms and on the the sheetrock that holds so many of these camps in place. I don’t know your names, but all ya’ll have come before me and I thank you for your service and your commitment to allowing doctors to study the disease in you, so that I might live. I honor hundreds of thousands of you, some of whom aren’t here any more, but so many of us are here and leaving our cancer days behind because of you.

I will not forget that.

Now back to the pile sitting in the picture at the beginning of this post. Thank you all for your letters and your love and for not letting go of me when I was taking the swim test at camp. I survived because of you, too, and I’m forever grateful that you cheered me on as I made it, finally, to the other side.

Much love,

Sooze